What is it? What does it do?

An EMR integrated, web-based, patient-entered family history disease collection and risk stratification platform which delivers evidence-based, clinically actionable decision support to clinicians at the point-of-care. MyFHH is a collaborative effort of Cleveland Clinic’s Genomic Medicine Institute, Learner Research Institute and Center for Personalized Healthcare, Medicine Institute. MyFHH was developed to respond to the current inconsistent, incomplete, and unstructured nature of family history data.

Why is it better?

  • Invitations to complete MyFHH are tied to an appointment type (“Established Physical”), a provider, and a location. Two weeks in advance of their qualifying appointment, patients are sent an invitation to complete MyFHH through their patient portal inbox account.
  • From the comfort of his/her chosen location, patients enter information before the scheduled appointment.  MyFHH collects personal/background information, family structure, and family disease history. Patients can save and return as many times as they would like before submitting.
  • After a patient submits his/her responses, a MyFHH disease risk reference document is created and linked the encounter note of the clinician.  This allows the clinician to review stratified disease risk and evidence/consensus-based recommendations at the point-of-care.
  • Only the patient’s ordering clinician can review and accept the disease risk reference.  Upon acceptance, the disease risk reference and related pedigrees are integrated into the patient’s electronic medical record.  At this point all caregivers can access the results for reference in future appointments.

What is its current status?

MyFHH is in use at Cleveland Clinic and is available for licensing.

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